If you need to speak to someone please call 0300 111 0004 calls are charged at your call providers normal rates.

Support For Those Living With the Conditions

The Ann Conroy Trust have a closed private Facebook group where people living with Chiari Malformation and Syringomyelia can find support from others living with the conditions. In the Facebook search bar place Ann Conroy Trust, a list will appear, the group to click is the 'Ann Conroy Trust Closed Group'.

Support For Partners and family

When a loved one is diagnosed with Chiari Malformation or Syringomyelia, family, partners and those closest are affected too. This group is somewhere to share worries, find support and share thoughts with others in the same situation. To join this group place Chiari Syringomyelia Family and Partner Support UK in the Facebook search bar. The group will appear in a list, click on the group and request to be added.

The Ann Conroy Trust are a member of the Neurological Alliance, this is a collective voice for over 80 neurological conditions.  -