Ann Conroy Trust

Support Education and Research

For those living with

Chiari Malformation, Syringomyelia and associated conditions

Our website is currently undergoing development, with new content being added to it all the time.

Please note, we are a small charity, run entirely by volunteers, being a group of patients, healthcare professionals, their families and friends.  We are not a government agency and are not part of the NHS.  We endeavour to assist people living with syringomyelia &/or Chiari but, at times, may be unable to provide comprehensive support, for which we apologise.  We will post additional notices, from time to time, relating to our various services.

It is with great sadness that we announce the death of our chairman, Lynn Burton. Lynn passed-away peacefully, in the early hours of Sunday 3rd May, 2020. We offer our sincere condolences to Lynn’s husband Lester, and to her children and grandchildren.


Lynn had been battling cancer for some two years, during which time she continued to work for the Ann Conroy Trust, always keeping at the forefront of her thoughts the welfare of those who, as she had done, live with the effects of Chiari and syringomyelia. There are many people who owe a great deal to Lynn.


Unfortunately, the current global health crisis means that attendance at Lynn’s funeral will be limited to immediate family members. We nevertheless realise that a lot of people, who have been associated with the Ann Conroy Trust over the past fifteen years, will want to express their thanks to Lynn. We therefore invite anybody who wishes to do so, to send their thoughts, messages and memories of Lynn to us, via e-mail or our Facebook page, so that we can include them in the next edition of our magazine, which will be dedicated to the memory of Lynn.

12 April 2020

If you are concerned about the effects of the Coronavirus in relation to your own medical condition, then please consult your own hospital specialist.

In general you should always follow the government’s advice via their website https://www.gov.uk/coronavirus.

15 March 2020


At the present time, several of our operational volunteers are unfortunately unable to carry out their Charity roles.


Due to this and also the current circumstances we find ourselves in and the impending restrictions that will be in place, as a result of the coronavirus outbreak, we are unfortunately going to have to put most of our Charity functions and services, on hold for the time being.


We sincerely apologise for any inconvenience this may cause you, we hope to re-establish some of our services sometime in the future.


Thank you for your support, understanding and co-operation at this time.


For people living with the conditions and their carers


Who we are and what we do


Information for medical professionals


We rely on your support!

The latest images from around the Ann Conroy Trust

If you are fundraising and would like to send an article or some images to us, please use this link!


Ann Conroy Trust CIO

registered in England number 1165808