The aim of the Ann Conroy Trust Local Support Groups is to bring together, in a local area, people living with, or recently diagnosed with, Chiari malformationAn anatomical abnormality affecting the lowermost part of brain, where it joins the spinal cord, at the top of the neck. Various sub-types are described – see under their individual names. The term hindbrain hernia is sometimes used to incorporate all forms. and/or syringomyeliaA cavity, within the spinal cord, which is filled with cerebrospinal fluid. Syringomyelia cavities come in various “shapes and sizes”, from short, spindle-shaped cavities through to long, tense cavities extending throughout the greater part of the spinal cord. Read more, in order for them to meet, socialise and share experiences in an informal and supportive setting. These groups cannot provide medical advice or information to their own members or others. Nor are meetings to be used for the criticism of healthcare professionals, or political campaigning. Anything discussed in the group must remain confidential and we ask members to always respect others’ privacy. Information would only be shared with outside organisations in exceptional circumstances, in particular where someone is at risk of harm, abuse, or if any other safeguarding issue came to light. Any queries arising from the group meetings should be directed to the Ann Conroy Trust website where further information on the conditions and a list of professionals can be found.