Become a Member

Membership is the life-blood of our charity and is open to all, whether you are living with Chiari malformation and/or syringomyelia, you are a family member, friend or carer.  Maybe you are interested in the vital work we do?

We need YOUR support, so please don't hesitate. Get involved, we'd love to hear from you. Your support really can make all the difference.

We currently offer a range of memberships, details below:

Type of Membership



Joining Fee


Annual Renewal


Life membership



Life Membership



Annual Membership


Life Membership


*Life membership means for the lifetime of the member, whilst the charity is in existence.


We always welcome new members to the Charity.  If you would like to become a member simply contact us via email at and we will send you a membership form. Alternatively, click on the membership form above, print it out, fill it in and return the relevant sections of the form to us, indicating your payment method.  We would encourage you to complete the Gift Aid section of the form if you are eligible.

Payment can be made by cheque, standing order or bank transfer.  If you decide to pay by standing order, complete the bottom section of the form.  This will then need to be detached and sent to your bank.

Subscriptions for membership renewal are due on the 01 January each year.

Members will receive a copy of our ACT magazine, which is published three times a year. Corporate members will receive recognition in our magazine, if they wish.

The magazine remains one of our principal means of communicating with our members and is therefore sent to all paid-up members.  Indeed, the membership fee of £15 per annum just about covers our outgoings in producing it. The Charity’s main sources of income are from fundraising and donations. In order to keep these assets for teaching, research & support activities, we restrict automatic circulation of our magazine to subscribing members only.  Please do therefore, keep your membership subscriptions up-to-date and do also inform us of any change of address.  We only keep contact details about you on our mailing list and no other information. We will not release your contact details to any other parties. Any notifications about events, requests for participation in research projects etc, will all be made via our Charity magazine.

Members will also receive a subsidised rate to attend our Annual meetings.